One important resource, very special to April and her family, is the Children's Craniofacial Association (CCA), a national non-profit group based here in Dallas.
CCA is dedicated to improving the quality of life for people with facial differences. The group's mission works to empower and give hope to individuals affected by these facial differences, as well as to their families.
April recommends the group for its networking tools, in addition to its education component.
"The best thing CCA does is bring us all together," she says.
"In the beginning, you wonder how you'll make it through all this. But together with our doctors and the connections CCA has helped with, we know we're going to be fine."
The recurring visits with pediatricians, craniofacial experts, neurologists, and opthamologists can certainly seem overwhelming, but for April it's now simply part of their journey.
"Every child is an individual," she says. "Every child has different problems, but just talking through it - and about it - makes a big difference."
"I welcome the conversations, actually."
"As a form of education, I don't want people to be afraid to ask questions. Some of the best questions come from young children. There's no malice in an honest question. We want to help in the education process for people."
"I love having the opportunity for people to surprise you," says April. "The support we're getting from our neighbors, our friends, the community - it's amazing."
"Our greatest hope is to see John succeed in a community that has known him growing up. We think Lake Highlands is a great place for that to happen."
"The biggest disservice we could ever do John would be to not expect the most of him, or his other friends affected by craniofacial syndromes. When you have a child who's different, it actually enables you to be yourself, in a way."
"John is going to be okay and happy - and we are, too."
"I certainly don't want people assuming I'm sad because of Crouzon Syndrome. It didn't ruin my mommyhood, and it certainly didn't destroy us."
"While John may look different from other children, we're learning along with everyone else that doesn't really make him any different."
But meeting April and getting the chance to know her has certainly made me different - and better.
Odds are, if you have the chance to meet her, you'll feel the same way.
April is one Lake Highlands mom bringing a little sunshine and some important education to our neck of the woods.
Thanks for making just about everyday Mother's Day, April. And a happy Mother's Day to all the moms of LH!
For more information on craniofacial syndromes, visit the Children's Craniofacial Association website by clicking here.
To learn more about Torey's Distraction, and future festival screenings, you can visit the film's website here.


Robin Moss Norcross on May 13 2010
Thanks LHT for another great story about one heck of an incredible mom and neighbor.
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